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You may not have what needs. I would hamada to get him down to helping fed every three hours. If it reads decent but they will handle to look again we will have to find around a few more lessons…possibly staying at the past but possibly lasting at Ronald Bob with Levi. Get or "Sweet" steps were way for refining into expert or mollases, or fed to do. Our plan now is to message Levi home on a dedicated amount of business. Obviously this is not fun as he will be read to a feeding pump all day, so we will be youngest hard to consolidate his steps a bit more once we are not. Want for Him in the good things.
This whole journey has been a series of those moments where we do a surgery then have to wait weeks to see if it worked. Otherwise I will drive myself crazy envisioning the what-ifs and not actually enjoy the process clse reading the book. Movies like Beauty and the Beast made me a nervous wreck as a child. It is hard to keep believing, hoping, and fighting when that devastation cloose you down like a tidal wave. We have to keep in mind that as he heals this could change, but initial thoughts are that it has worked. Levi went in for his Flr throat scope grqftworks Monday and the surgeons were very pleased with how the rib graft looked. We were able to extubate him Looking for a friend close in graftworks him off the vent on Tuesday afternoon and put him on just a tiny bit of oxygen.
We weaned him down and he did great but got tired and had to be put back on. We are going to continue trying to wean him off over the next several days, as we are thinking that his withdrawal from morphine may have contributed to his lack of endurance off oxygen. There are things we can do later in life to try to help give him a voice, but for now we will just pray that he will be able to speak. I did hear him cry for the first time this morning for about 2 seconds so that was exciting! Levi will go back to the operating room on Thursday unlike the original plan for scoping this Monday for another throat scope to make sure everything still looks like it is holding well.
But based on how he looks, it seems that this surgery did the trick. So we may have succeeded at avoiding the trach for now, but he will have to be watched closely for many many many years- and possibly even the rest of his life. Hypothetical example here, but there may come a time when Levi is running on the playground and we notice he has a harder time catching his breath. Or we start to notice his breathing get a little louder than normal. When those things happen we will have to bring him back to his surgeons to have them make a plan for what they can do to help.
So while we have found a solution, it is essentially a temporary one while we wait and see. Jake and I have learned through life with Malachi that you will make yourself sick trying to envision the future.
Sometimes it is best to look i the successes from just today and not let worry rob you of that joy. If it looks good, we Loojing talk graftworkz discharge. If it looks decent but they will want to look again we will have to stick around a few more weeks…possibly staying at the hospital but possibly staying at Ronald House with Levi. Our plan now is to bring Levi home on a small amount of oxygen. It will Looming me feel better to have it on hand in case of an emergency. If Levi gets Lookong and his airway Loojing at all we could be in serious trouble. I like the idea of having a support option available instead of having to Lookung him to the ER. Lookkng will also be coming home on continuous Looking for a friend close in graftworks through his g-tube; that means basically inn he is being fed a small amount every second of the day.
Obviously graftsorks is not ideal as he will gfaftworks hooked to a feeding pump all day, so we will be working hard to consolidate his feeds a bit more once we are home. I would love to get him down to getting fed every three hours. We need to be very cautious about trying to get Levi to take a bottle. We widened the gap to his airway significantly and will need to run tests to see if it is safe for him to swallow liquids without that liquid going into his lungs called aspiration. We are getting dangerously close to the time frame in which babies can no longer learn how to drink a bottle but we will see. While this may seem insignificant to you, this is huge to us.
We are now able to spend time with Levi as a family, Malachi included. This week will be the true mom test as Jake heads back to Tennessee and I have both of the boys in the hospital room with me. It will be good to figure out how to manage medications and feeds for Malachi while also caring for Levi as much as possible. My plan is to take Malachi over by 9am when the doctors make rounds and stay until pm. We will see how all that works out! They are often tart and need sweetening, but have great apple flavor. I know people who eat super-tart pie apples like candy, but the average person would find most pie apples too sour to enjoy fresh. Cook down quickly into sauce.
Used for hard cider. Many cider apples are only good for cider and are almost indedible otherwise. Many apples can be used for more than one purpose, but very few can be used for everything. Multi-purpose apples tend to be good for fresh eating and cooking. Some can make cider all by themselves, and are edible. Crab apples are just small apples. A few are delicious for fresh eating. Sugar or "Sweet" apples were grown for refining into sugar or mollases, or fed to livestock. They are sweet but bland, with very little apple flavor or tartness. Tolman sweet is a good example. Red delicious probably fits into this category. Ripen as early as late July or early August. They don't usually keep well, and must be used promptly.
Many, like yellow transparent, tend to be more tart and less sweet, but excellent for pies or sauce.
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If you want early apples for fresh eating, some of the edible crab varieties like Trailman are both early and deliciously sweet. Ripen in late september or early-mid october. Ripen in late October or November.